GRASSIR

RESPONSABLE DEL GRUP
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Gemma Falguera Puig
gfalguera.mn.ics@gencat.cat
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Publicacions

Women’s experiences along the ovarian cancer diagnostic pathway in Catalonia: A qualitative study

C. VELA-VALLESPIN, L. MEDINA-PERUCHA, C. JACQUES-AVINO, N. CODERN-BOVE, M. HARRIS, J. BORRAS and M. MARZO-CASTILLEJO
2023 Feb 1; . doi:10.1111/hex.13681; PMID:36447409

  • Ans: 01/02/2023
  • FI: 3

BackgroundEarly detection of symptoms and prompt diagnosis of ovarian cancer are considered important avenues for improving patient experiences and outcomes. MethodsThis qualitative study used a phenomenological approach to perform patient interviews, collecting individual accounts of the prediagnostic phase in women diagnosed and treated for ovarian cancer in 2016-2017. Purposive sampling was used to obtain a diverse sample of 24 participants, while thematic content analysis was used to extract themes and subthemes from interview data. ResultsThree themes and nine subthemes were identified. The first theme was women’s delay in recognizing symptoms and seeking care, with subthemes on the lack of knowledge about early signs of ovarian cancer, gender-related barriers and false reassurance from negative test results. A second theme was missed opportunities during healthcare encounters, due to misattribution of women’s symptoms by their physicians, underestimation of symptom severity and need for mediation and inadequate tests and/or false negative results. Finally, interviews highlighted the use of resources and alternative healthcare pathways, including complementary/alternative medicines, access to private health care and women’s capacity for action and decision-making (agency) about their health. ConclusionDelayed diagnosis of ovarian cancer is rooted in both individual factors (lack of health literacy, reluctance to seek care) and systemic issues (missed opportunities in healthcare encounters, access to timely specialist care). Further research is needed to investigate the extent to which traditional gender roles and socioeconomic inequalities condition women’s ability to manage their own health and to interact with health professionals and the health system. Patient and Public ContributionIn addition to the patient participation during the interviews, one author was a representative of a patient association.

Menstrual health and management during the COVID-19 syndemic in the Barcelona area (Spain): A qualitative study.

Holst AS, Jacques-Aviñó C, Berenguera A, Martínez-Bueno C, Munrós-Feliu J, Pinzón-Sanabria D, Valls-Llobet C, López-Jiménez T, García-Egea A, Vicente-Hernández MM and Medina-Perucha L
2023 Jan 1; . doi:10.1177/17455057231166644; PMID:37092568

  • Ans: 01/01/2023
  • FI:

BACKGROUND: Available evidence suggests that menstrual health and management have been impaired during the COVID-19 syndemic. However, research in this area is scarce, and it is failing to voice the experiences of women and people who menstruate regarding their menstrual experiences. OBJECTIVES: This study aimed to explore the experiences of menstrual health and menstrual management among women and people who menstruate in the Barcelona area (Spain) during the COVID-19 syndemic. DESIGN: This is a qualitative study, conducted taking a critical feminist approach, is embedded in the ‘Equity and Menstrual Health in Spain’ project. METHODS: It includes photo-elicitation individual interviews with 34 women and people who menstruate in the area of Barcelona (Spain). Data were collected in person and through telephone calls between December 2020 and February 2021. Analyses were performed using Thematic Analysis. RESULTS: Main findings navigated through the menstrual changes experienced by some participants, especially women living with long COVID-19, and the barriers to access healthcare and menstrual products during COVID-19. While some participants experienced menstrual poverty, this did not appear to be exacerbated during COVID-19. Instead, access to menstrual products was compromised based on products’ availability and mobility restrictions. Menstrual management and self-care were generally easier, given that menstrual experiences were almost exclusively relegated to private spaces during lockdown periods. CONCLUSIONS: Our findings highlight the need to further research and policy efforts towards promoting menstrual health and equity, considering social determinants of health, and taking intersectional and gender-based approaches. These strategies should be further encouraged in social and health crises such as the COVID-19 syndemic.

Narratives on changes in health-related behaviours during lockdown in Spain according to gender

C. JACQUES-AVIÑÓ, L. MEDINA-PERUCHA, Y. YOUNG-SILVA, L. GRANÉS, T. LÒPEZ-JIMÉNEZ and A. BERENGUERA
2023 Jan 1; . doi:10.1016/j.gaceta.2023.102296; PMID:36921453

  • Ans: 01/01/2023
  • FI: 1.5

??Objective: To explore experiences related to health-oriented behaviours during lockdown in the Spanish resident population from a gender perspective. Method: Qualitative research with a critical and feminist approach. Twenty-nine semi-structured inter-views (17 women and 12 men) were conducted between June and July 2020 via telephone with people who had previously answered an online survey. The interviews were transcribed and a thematic content analysis was carried out, differentiating between the experiences of women and men. The data were triangulated by the research team. Results: Among women, greater diversity emerged in terms of health behaviours. Among them, the dif-ficult experiences related to COVID-19, the complexity of living together and doing unpaid care work, as well as the importance of support networks, stood out. Among men, there were different attitudes towards sport, self-care and having time for healthy eating were positively valued, and there was a good assessment of coexistence and organisation in household chores. In both men and women, work over-load and economic problems were related to emotional distress and difficulties in carrying out healthy activities.

Adolescents and Young Adults Evaluating a Website for Affective-Sexual Information and Education: A Mixed-Methods Study Protocol

L. MONTERO-PONS, G. FALGUERA-PUIG, R. GARCIA-SIERRA, J. MANRESA-DOMINGUEZ, A. REYES-LACALLE, R. CABEDO-FERREIRO, J. COS-BUSQUETS, A. MARFA, M. PEREZ and D. RODRIGUEZ-MARTIN
2022 Dec 1; . doi:10.3390/ijerph192416586; PMID:36554465

  • Ans: 01/12/2022
  • FI: 4.614

The website Sexe Joves is a website on sexuality of the Department of Health of the Government of Catalonia (Spain). This study aims to understand the experiences and opinions of people aged 14 to 25 regarding this website, taking into account sex, gender identity, sexual orientation, socioeconomic status and location within Catalonia (urban, semiurban and rural areas). With the objective of improving the website and adpating the resources allocated to it, this study evaluates whether this population is familiar with it and uses it, as well as the website’s usability and accessibility (digital equity), usefulness and the relevance of its content. A parallel convergent triangulation design is used: a qualitative study using a social constructivist perspective, and an observational, descriptive and cross-sectional quantitative study. We conduct a discourse analysis of participants and use an “ad hoc” questionnaire to collect quantitative data. A descriptive analysis of all variables is carried out. Affective-sexual education aimed at young people must stem from their participation and the whole range of sexual and gender diversity in order to reach the entire population equally. This analysis will contribute to the design of new strategies for the wesbite Sexe Joves, a public health resource, in order to improve affective-sexual education for young people.

“Maternal Vaccination Greatly Depends on Your Trust in the Healthcare System”: A Qualitative Study on the Acceptability of Maternal Vaccines among Pregnant Women and Healthcare Workers in Barcelona, Spain

A. MARIN-COS, E. MARBAN-CASTRO, I. NEDIC, M. FERRARI, E. CRESPO-MIRASOL, L. VENTURA, B. ZAMORA, V. FUMADO, C. MENENDEZ, C. BUENO, A. LLUPIA, M. LOPEZ, A. GONCE and A. BARDAJI
2022 Dec 1; . doi:10.3390/vaccines10122015; PMID:36560425

  • Ans: 01/12/2022
  • FI: 7.8

The World Health Organization (WHO) identified vaccine hesitancy as one of the top 10 threats to global health in 2019. Health promotion and education have been seen to improve knowledge and uptake of vaccinations in pregnancy. This qualitative study was conducted based on phenomenology, a methodological approach to understand first-hand experiences, and grounded theory, an inductive approach to analyse data, where theoretical generalisations emerge. Data were collected through semi-structured interviews with pregnant women attending antenatal care services and healthcare workers (HCWs) in Barcelona, Spain. Interviews were audio-recorded, transcribed, and coded, and notes were taken. Inductive thematic analysis was performed, and data were manually coded. Pertussis was reported as the most trusted vaccine among pregnant women due to its long-standing background as a recommended vaccine in pregnancy. The influenza vaccine was regarded as less important since it was perceived to cause mild disease. The COVID-19 vaccine was the least trustworthy for pregnant women due to uncertainties about effectiveness, health effects in the mid- and long-term, the fast development of the vaccine mRNA technology, and the perceptions of limited data on vaccine safety. However, the necessity to be vaccinated was justified by pregnant women due to the exceptional circumstances of the COVID-19 pandemic. The recommendations provided by HCW and the established relationship between the HCW, particularly midwives, and pregnant women were the main factors affecting decision-making. The role of mass media was perceived as key to helping provide reliable messages about the need for vaccines during pregnancy. Overall, vaccines administered during pregnancy were perceived as great tools associated with better health and improved quality of life. Pregnancy was envisioned as a vulnerable period in women’s lives that required risk-benefits assessments for decision-making about maternal vaccinations. A holistic approach involving the community and society was considered crucial for health education regarding maternal vaccines in support of the work conducted by HCWs.

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